To: The Weinsteins (RE: MS – a (hopefully) good email)
Accessibility Notice
This post was created on the previous version of the MRFF website, and may not be fully accessible to users of assistive technology. If you need help accessing this content, please reach out via email.Dear Mrs. and Mr. Weinstein,
As someone who is a great admirer of the work you are doing, I was upset to read that on top of all of the risks that you have taken on that Mrs. Weinstein is afflicted with multiple sclerosis.
I am writing this just to make sure that you are aware of the potential use of 4-aminopyridine in the treatment of MS. The clinical trials conducted by Acorda Therapeutics, plus the experience of large numbers of members of the MS community, has indicated that this therapeutic agent provides substantial
benefit to 1/3 to 1/2 of individuals with MS. On the chance that this is something that you were not aware about, I have attached an information sheet that I have prepared for individuals with MS or spinal cord injury. The dosage recommendations are in regards to spinal cord injury, but would be similar for MS.
If you have not been aware of this, and find this information useful, but have further questions please do not hesitate to contact me. It would be an honor to talk with you.
With all the best wishes,
(name and location withheld)
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